LATEST POSTS
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A Chemo Cocktail: My Experience with PCV
Maybe this is the first step toward my bigger goal: helping others help themselves. I want people to experience that shift, that feeling of hard work paying off and keeping the promises you make to yourself.
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My Radiotherapy Journey: 30 Days Under the Mask
These masks hold your head perfectly still during treatment because even the slightest movement can change where the radiation hits, so precision is everything. The fitting involved stretching a warm thermoplastic material over my face. It moulded itself perfectly as it cooled and hardened. You could still breathe, but it did feel a bit claustrophobic.…
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Navigating Scanxiety: Insights on Tumor Progression
It’s a heavy weight to bear at times, but then I remind myself that many others are facing far tougher battles, some lying in hospital beds, dreaming of the chances I still have. The chance to live, to move, to be well enough to explore and experience the world. That perspective helps quiet the negative…
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Chapter 12 – The Return
Returning to work felt like pulling the ripcord mid-freefall, a sudden jolt, a rush of movement, and then, finally, a slow drift back toward something that looked and felt like stability. Serenity and silence for my mind. At least for a little while.
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Chapter 11 – Seizures, sunrises and sunsets
After Jessie and I decided to explore the UK together, we set off on an adventure that took us through many historic sites and breathtaking landscapes, though not without a few unexpected health scares to spice things up.
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Chapter 10 – Jessica Vaillancourt – My Life Partner, Soulmate, and Rock
A New Beginning Jessie came into my life and turned it upside down in an instant. From the moment we met, there were instant fireworks. She had it all—a super sexy yet elegant appearance, with natural brunette hair that flowed effortlessly and a warm smile that was incredibly infectious. Be warned though, you have to
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Chapter 9 – A taste of stoicism and purpose
Besides this blog: which I consider to be a personal account of ‘one man’s story‘ and how I dealt with life after diagnosis, I have also created an Instagram account. I plan to use it as a vessel to encourage me to research, learn, and disseminate worthwhile information relating to brain tumours and perhaps a
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Chapter 8 – The Journey from Surviving to Living
A hell of a lot has happened in a short space of time. It’s hard to believe it’s been 14 months since my initial diagnosis, and a year since my awake craniotomy in February, 2023. So I believe I’m overdue to wish myself a Happy Crainiversary! Right about now, a year ago, I had been
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Update – Neurons and new beginnings.
Hello everyone. Long time no see! March marks Brain Tumour Awareness Month, making it the perfect time to share updates on my journey and experiences. I’m grateful for your patience and the ongoing words of encouragement I’ve received during this period. I have taken the time to revamp my website, so feel free to take
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Chapter 6 – The Road to Recovery
Hey! It’s been quite a while since my last post, apologies for the delay on this one. Call it writer’s block if you will, but I have been putting 100% into getting back after it in the gym and generally grabbing life with both hands whenever I can. I have taken my time with the
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Chapter 5- The removal of ‘Bob’
16th of February, 7:00AM – Gate 24 – Southmead Hospital I sat patiently waiting to be called through from the waiting area to the Medi-rooms for my final pre-surgical checks. My stomach gave a loud groan of complaint. It could have been the nerves but it was more likely that I been ‘nil by mouth’
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Chapter 4 – Too Much, Too little , Just Enough.
This chapter in my story covers what I got up in the interim period post diagnosis but pre-surgery. My Return to work, trips to Egypt and things I got up to awaiting T-day.
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Chapter 3 – The MDP
During the wait for my MDP (Multi disciplinary panel) I took full advantage of any sympathy food to come my way. You would be surprised by how far getting knocked off an e-scooter gets you in terms of free-food! On the run up to Christmas 2022 I honestly had one of the most jam packed
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Chapter 2 – F is for follow up…
Full disclosure, my writing standards may not be up to scratch for the next couple of weeks at least. I set a very high bar the look of things which may struggle to meet but hey! The truth is I am still dealing with a phenomena known as Aphasia from my recent surgery (4 weeks
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Chapter 1 – D is for Diagnosis
Thursday the 8th of December 2022. I opened my eyes in shock with a gasp, having been hit with a sudden wave of cold air, my brain hadn’t quite woken up yet and I felt slightly confused having just had the strangest dream which lingered like a deja-vu and was so peculiar it didn’t seem
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About my Story
I am committed to bringing you my true, raw and unfiltered experiences living with a brain tumour. Expect a humorous take on a gritty and often difficult subject. Through the lens of positivity, I examine the daily struggles and challenges of those of us living with brain tumours.
I aim to advocate, educate and shed light on an often misunderstood subject.
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Eye Am Connor 