Medical Information & Emergency Contacts
Name: Connor McCann
Date of Birth: 08/05/1990
16 Great Western House, Bristol, Gas Ferry Road BS16GN, UK. Age 35, NHS number: 3310260550.
I am Connor. If you’re reading this, I may be having a seizure in a public place. Don’t Panic! They only last 2 to 6 minutes. Please stay with me during the seizure.
Epilepsy Alert
Seizure Protocol – What to Do if I have a Seizure.
During the seizure
- I will get into a safe position on my own if possible.
- Please do not restrain me.
- Stay calm and keep the area around me clear.
Emergency medication
- I will try to take my emergency medication myself.
- My emergency medication is kept with my keys, usually in my right-hand pocket.
When to call emergency services
Please only call emergency services if:
- The seizure lasts longer than my usual 5 minutes.
- I am injured.
- I do not regain awareness.
Communication After a Seizure
- I may not be able to speak clearly.
- I may mix up words, especially when answering yes or no questions.
- Simple hand signals are usually easier for me once the seizure has ended.
You can ask:
- “Have you taken your emergency medication?”
- “Do you want me to call the hospital?”
- “Do you want some water?”
I can usually respond with: 👍 Thumbs up for yes 👎 Thumbs down for no
Thank you for your help!
EMERGENCY CONTACTS (see more)
Name: Jaclyn Pugh
Relationship: Friend
Phone: +44 7868 076762
Email: jaclyndeane@hotmail.com
Name: Laura McCann
Relationship: Sister
Phone: +44 7900 627595
Email: lauramccann@hotmail.com
Name: Barry McCann
Relationship: Brother
Phone: +44 7508 235985
Email: barrymccann7@hotmail.com
MEDICAL INFORMATION (see more)
Primary Condition: Low Grade Glioma (Astrocytoma II) & Epilepsy
Monitoring: Regular MRI scans 6/12 – last Scan October 2025
Diagnosis: IDH1‑mutant astrocytoma (WHO Grade 2)
Genetics: TP53 Arg273Cys mutation (VAF 78%)
Treatment History:
Feb 2023: Awake craniotomy (approx. 70% tumour resection)
Radiotherapy completed (July 2025)
Chemotherapy: PCV (procarbazine, lomustine/CCNU, vincristine) — Ongoing – 5th cycle completed
Neurological History
- Focal Epilepsy related to Brain tumour
- Typical seizure presentation: Sense of dread → aphasia (can’t communicate) → numbness & twitching of RHS (face and arm) → uncontrolled movement of head, neck, arm, breathing difficulties, especially as the seizure progresses to the final stages. But possible to breathe if reminded→ typically resolves without loss of consciousness.
- If my seizure lasts more than 6 minutes or I have multiple then I need Emergency Care.
- I may be unable to think or communicate clearly during and shortly after a seizure.
- Please ensure that I have taken my emergency meds if not done so already prior to the seizure.
REGULAR MEDICATION (see more)
Briviact (Brivaracetam) – 100 mg Twice daily
Vimpat (Lacosamide) – 250 mg Twice Daily
Clobazam – 50 mg as needed (emergency relief for seizures)
Chemotherapy‑Related
- Procarbazine (P)
- Lomustine/CCNU (C)
- Vincristine (V)
- Anti‑sickness as needed (e.g., ondansetron, Cyclinzine)
Supplements Taken Regularly
- Omega‑3
- Zinc & Copper
- Turmeric tablets
- N Acetyl L Cysteine (NAC)
- D & K2
- Magnesium
- L-Theanine
Allergies / Sensitivities
Other sensitivities: Sensitivity to neuro‑fatigue + cognitive overload after surgery.
Drug allergies: None known
Food allergies: None known
MEDICAL TEAM (see more)
Oncology Nurse / Team: Dr Hawley/ Faulkner, Bristol and or the Specialist Nurses Bristol Haematology & Oncology Centre, Horfield Road, Bristol, BS2 8ED, 0117 3429885, neuro-oncologyCNSTeam@uhbw.nhs.uk
Epilepsy Specialist Nurses: Southmead, Southmead Rd, Bristol BS10 5NB
Email: linsha.ealias@nbt.nhs.uk, Epilepsy Coordinator Email: EpilepsyNurseCoordinator@nbt.nhs.uk, Epilepsy Coordinator Tel: 0117 414 6456
Neurosurgeon: Dr Iyer, Southmead, Southmead Rd, Bristol BS10 5NB, 0117 414 7352,
GP Practice: Dr Jones, 59 Broadmead, Bristol BS13EA, 0117 954 9828
Eye Am Connor 